Joseph had his sedated MRI on Monday afternoon and on Tuesday evening the nurse from Dr. Pappas' office called. I was not expecting to hear from them so soon and was quite shocked to say the least when Nancy called.
Ok, here is the run down on bloodwork:
Celiac-negative
TSH & T4-perfect
CBC w/diff-all within normal range
MRI-a bit questionable........there appears to be something that may be scar tissue near in or around Joseph's left frontal lobe. This is the same area where there was a good bit of irritable foci on his EEG. Now, this area could be simply underdeveloped due to his prematurity BUT he was just 4 weeks early since he and Jackie were born at 36 weeks and that is NOT all that early really; so I find it highly unlikely this is simply stunted maturity in this brain region. We will likely repeat the MRI in 6 months, Nancy (the RN) was not positive since she does not read the reports on a regular basis nor doees she fully understand the findings. She is going to have Dr. Patel (since Pappas is in Greece still) check the report and get back with me on the follow up plan.
Seizures-the prolonged EEG is on hold yet, we are going to up the Trileptal once again to 3ml twice a day and see what happens.
While this is not entirely what I was wanting to hear today, I can rejoice in the fact my son does not have leukemia, does not have hypothyroidism or hyperthyroidism, and does not have Celiac's. We will pray this area is not a big deal but I have to admit I am a bit frightened by the possibilities. Nancy said something about hypo (blahblah) myleogenous (somethingerother) frontal lobe in the left hemisphere. Not much information but it's something! LOL I will know more soon.
Now for the fun stuff! I am also soliciting funds for my team, Taylorville-Three-21, to participate in BUDDY WALK 2009. BW's take place all over the states by various Down syndrome foundations and organizations. Our BW for Indiana will take place in Indy, October 10, 2009 in Celebration Park. BW's are very important because they raise funds for research, support, and raise awareness about Down syndrome in our communities. This will be the first year we will be participating in the 2K walk and I am VERY excited. My two best friends, Carrie & Kelly will be walking with us and so will their daughters, Kristian, Mallory, and Delaney. I am so blessed to have such a supportive and loving extended family. They may not be my sisters by blood but God has blessed me with their love and tied our hearts together for the long haul. Thank you so much for helping us. You can find a link to my donation page in my side bar to the right of this post or you can simply copy & paste the link below and be taken to the page.
http://www.firstgiving.com/christietaylor
until next time,
"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has"~~Margaret Mead
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